It’s Time to Talk.
A warrior and a Friend
- Man of God and Truth
- Man of Strength and Determination
- Warm and Giving Heart
- Rare Disease and Traumatic Post-Surgical Traumatic Arthritis Victim
- Forty Known Surgeries to Date
- Suffers Unimaginable Pain and Insomnia Daily
- Partially Deaf with implants in hearing ear.
- Left knee replacement with prosthetic knee and kneecap. (revision.)
- Left ankle reconstruction.
- Left shoulder replacement (August/September 2021.
- Severe labral tear in left hip.
- Five shoulder surgeries to repair multiple soft tissue and ligament damage.
- Multiple, pronounced and progressive dental and oral-fascia reconstructions.
- Multiple, pronounced, and extensive ear manipulations, and removal of cholesteotomas, structure, and fascia and bone replacement to facilitate the care, safety, and hearing of the left and then right auditory canal, bones, and tympanic membrane.
1 Kings 3:11-14 And God said to him, "Because you have asked this, and have not asked for yourself long life and riches or the life of your enemies, but have asked for yourself understanding to discern what is right, behold, I now do according to your word. Behold, I give you a wise and discerning mind, so that none like you has been before you and none like you shall arise after you. I give you also what you have not asked, both riches and honor, so that no other king shall compare with you, all your days. And if you walk in my ways, keeping my statutes and my commandments, aas your father David, walked, the "I will lengthen your days." 1 Kings 3:11-14 A Godly man, a Holy man is he . . .
I am just a man who does what needs to be done. I don’t ask for special treatment or better care because I’m different. In fact, I’d rather people ignore I’m different and treat me exactly the same as anybody else.
I’m smarter than the average Joe That is until I get treated different for something I have no power to change. I can’t change or the prevent the fact I was born deaf, can I? I can’t change the fact that i have a disabled wife to take care of now while trying to take care of my self.
Yes, I take opiods. yes, I and my wife are both DISABLED and RARE DISEASE MINORITY PATIENTS– I am an Ehlers Danlos fighter and she is a CRPS warrior (Type 2–look that up, learn the difference.) She’s a lot stronger and tougher than I could ever be.
I’ve had my medications cut back, eliminated, refused and my need for them dismissed as if I was exaggerating, lying, dealing, seeking, or simply whining about my pain levels. This latest provider cut my dose of long-acting opioids and breakthrough medications because I was suddenly in danger of heart problems I’ve never had or been diagnosed with or my family has never had or been diagnosed with having.
- worsening of insomnia
- uncontrolled pain in the afternoon
- uncontrolled pain in the morning
- severe nausea and vomiting from pain in the early mornings
- severe shoulder pain
- lack of ability to cope with agonizing pain at night
- decreased daily function
- decreased ability to care for my wife who is disabled
You tell me, is that what healthcare is supposed to be in America? I walk away with worse function and then the world applauds only to sound off at my complaints. I don’t know. It’s either the ol’ bandwagon is playin’ a wrong but popular tune or nobody is listenin’ to the words.
And I’m sick of paying for the band.